Mental Health Consumers and Carers
Last update: 5 December 2012,
by Maureen Bell
This page contains links to sites which contain information about consumers and their
involvement with mental health services, and information for consumers on various
mental disorders and their treatment.
Consumer sites related to
specific disorders will be found in the appropriate sections listed
in the right hand column.
You will find general health information for consumers on my public
Lists of books and journal articles relating to consumer and
carer issues can be found on my bibliographies and reading lists page.
Consumer and Carer
Active Outreach: An independent service user evaluation of a model of assertive outreach practice
By R Graley-Wetherall, and S Morgan. Sainsbury Centre for Mental Health, August 2005. This report examines the role of an assertive outreach team in Norwich, from the perspective of its users.
Adversity to Advocacy: Australia's first survey of mental health carers
Conducted by the Mental Health Council of Australia, this survey involved more than 1,500 mental health carers from across the nation coming together in small groups. Mental Health Council of Australia, 2009.
Alfred Psychiatry Consumer Participation (CAPPS) Project "Book of Procedures" Final Report
Jon Kroschel, Alfred Psychiatry Consumer Participation Group, June 2001. The report documents the development of a 'staff-consumer collaboration in treatment' workbook which is designed for collaborative use by case-managers and consumers within individual treatment settings, and aims to assist consumers to participate more fully within their own treatments.
Assessing the Promise: An Evaluation of the Work of the Consumer and Consumer Supporter National Technical Assistance Centers
The Center for Mental Health Services (CMHS) in the United States funds 5 national consumer and consumer-supporter Technical Assistance Centers (TACs) to accomplish the goals of assisting consumers in becoming independent, navigating services, developing self-help skills, communicating and supporting one another, and learning about resources. This 2002 Report is an evaluation of the five (5) consumer and consumer-supporter National Technical Assistance Centers (TACs).
Caring Together: An Action Plan for Carer Involvement in Victorian Public Mental Health Services
Victoria, Department of Human Services, Mental Health Branch, July 2005.
Connecting with Carers is Everybody's Business
By A. Bickerton, K. Hossack, and J. Nair, Working With Families Program, Sutherland Division of Mental Health, South Eastern
Sydney Illawarra Area Health Service.. NSW Health, Copyright 2007.
Consumer and Carer Participation
Resources from the Commonwealth Department of Health and Ageing.
Consumer-Operated Services Evidence-Based Practices (EBP) Kit
Consumer Self-Rated Outcome Measures in Mental Health
United States Substance Abuse and Mental Health Services Administration's (SAMHSA) June 2011.
A Report to the Mental Health Branch, Department of Human Services (Victoria), by Siggins Miller Consultants, October 2003.
Self-Help Programs: A Technical Report, National Mental Health
Consumer/Survivor-Operated Self-help Programs, A Retrospective
Review of the Mental Health Consumer/Survivor Movement and 13
Federally Funded Consumer/Survivor-Operated Service Programs in the
1980s. U.S. Department of Health and Human Services, Substance
Abuse and Mental Health Services Administration, Center for Mental
Health Services. February 2001. This is the first comprehensive
documentation of the experiences of consumers/survivors in
designing and operating their own self-help programs.
COPMI - Children of Parents with a Mental Illness - Consumer and Carer Participation Strategies
Although COPMI's main focus is on children of parents with a mental illness, the resources on this page have a much broader focus.
Developing Services for Carers and Families of People with Mental
Department of Health (U.K.) November 2002. The aim of this document
is to help local mental health services develop support services
for carers of people with mental health problems.
Experts by experience: strengthening the mental health consumer voice in Tasmania
By Teresa Hinton. Anglicare Tasmania, 15 June 2009.
Identifying the carer project: Final report and recommendations for the Commonwealth Department of Health and Ageing
The "Identifying the carer project" examined issues associated with identification of carers in the context of mental health service delivery. This included current practice, policy and legislation, and preferred processes. Project Manager Janne McMahon, Project Officer Judy Hardy, Project Assistant Ruth Carson. Private Mental Health Consumer Carer Network (Australia), 2007.
In Our Experience: User-Focused Monitoring of Mental Health
Sainsbury Centre for Mental Health, March 1998. Reviewing a groundbreaking partnership between Kensington & Chelsea and Westminster Health Authority (KCW) and The Sainsbury Centre for Mental Health, this pilot study demonstrated that people with severe and enduring mental illness can have a voice in decisions about the mental health services that they receive.
Keeping personal budgets personal: learning from the experiences of older people, people with mental health problems and their carers
By Liz Newbronner, Ruth Chamberlain, Kate Bosanquet, Chris Bartlett, Bernd Sass and Caroline Glendinning. This report presents findings from research into the experiences of using personal budgets for older people, people with mental health problems and their carers, with suggestions for good practice and future improvement. Social Care Institute for Excellence.
SCIE Report 40: February 2011.
Mental Health Peer Workforce Competency Development Project
A project of the Community Services and Health Industry Skills Council (CS&HISC) to develop competency standards for the Mental Health peer workforce (consumers and carers).
On Our Own Terms: Users and Survivors of Mental health Services
Working Together for Support and Change
By Jan Wallcraft, Jim Read, and Angela Sweeney. Published on behalf
of the User Survey Steering Group. London, Sainsbury Centre for
Mental Health, 2003.
Our Choices in Mental Health: Improving choice for people who use mental health services and their carers
Sainsbury Centre for Mental Health, Briefing Paper 31, July 2006.
A literature review - Choice Literature Review: A Review of the Literature and Consultation on Choice and Decision-making for Users and Carers of Mental Health and Social Care Services is also available.
Our Voice in Our Future: Benefits
By Michael Turner. London, Shaping Our Lives/National Institute for
Social Work, 2000. This booklet is part of the Our Voice In Our
Future project which aims to give people who use services and
receive benefits provided through the welfare state a say in their
Our Voice in Our Future: Mental Health Issues
By Peter Beresford. London, Shaping Our Lives/National Institute
for Social Work, 2000.
Our Voice in Our Future: Services and Support
By Michael Turner. London, Shaping Our Lives/National Institute for
Social Work, 2000.
Promoting Consumer Participation in Mental Health Research: A National Workshop
Depressiona & Anxiety Consumer Research Unit, Centre for mental Health Research, Australian National University, September 2004.
Reforms to Mental Health and Their Impact on the Empowerment of
Consumers and Carers
University of Melbourne ePrints Repository - Phd thesis by Arthur J Lammers, School of Postgraduate
Nursing, Faculty of Medicine, Dentistry and Health Sciences,
University of Melbourne, 2002.
Service User Experience in Adult Mental Health: NICE Guideline
This clinical guidance offers evidence-based advice on ensuring a good experience of care for people who use adult NHS mental health services.
NICE Clinical Guideline CG136 December 2011
The National Institute for Health and Clinical Excellence has also published a Quality Standard describing high-quality care for adults using mental health services in the NHS in England.
Service Users and Carers. Centre for Mental Health
Policy papers and reports from the Centre for Mental Health in London (previously the Sainsbury Centre for Mental Health)
Strengthening consumer participation in Victoria’s public mental health services: Action plan
Melbourne, Portfolio Services and Strategic Projects, Department of Human Services, 2009.
Working Together With Families and Carers
Chief Psychiatrist's Guideline. Victoria, Department of Human Services, Mental Health Branch, April 2005.
Information For Consumers on Mental
Disorders and Services
- Health - Conditions - Mental health
Counselling & Psychotherapy Resources
A well designed and informative site which will be of value to both
clients and mental health practitioners. The site is the work of
Greg Mulhauser who has a PhD in Philosophy of Mind.
Eating Disorder Referral
and Information Center
The Eating Disorder Referral and Information Center is dedicated to
the prevention and treatment of eating disorders. The site provides
information about the treatment and prevention of eating disorders
and aims to promote social attitudes that enhance a healthy body
image and self-esteem.
e-couch: Free help for anxiety and depression
e-couch is a self-help interactive program with modules for depression, generalised anxiety and worry, social anxiety, relationship breakdown, and loss and grief. It provides evidence-based information and teaches strategies drawn from cognitive, behavioural and interpersonal therapies as well as relaxation and physical activity. The original version of e-couch was co-funded by Australia's beyondblue: the national depression initiative and the Centre for Mental Health Research at the Australian National University. e-couch has continued to be expanded and delivered by the Centre for Mental Health Research with funding from the Australian Commonwealth Department of Health & Ageing.
Alice!: Emotional Health
Go Ask Alice! is the health question and answer Internet site
produced by Alice!, Columbia University's Health Education Program
division of the Columbia University Health Service. "Alice" answers
questions about relationships; sexuality; sexual health; emotional
health; fitness; nutrition; alcohol, nicotine, and other drugs;
and, general health. This link is to the section on emotional
HealthInsite: A-Z Health Topics
HealthInsite is an Australian Government initiative, funded by the Department of Health and Ageing. It aims to improve the health of Australians by providing easy access to quality information about human health.
Healthy minds. Healthy lives.
Public information from the American Psychiatric Association.
Mental health encyclopaedia for professionals, consumers. Includes
extensive descriptions of the symptoms, diagnoses, and treatments
of the most common mental health disorders, as well as detailed
histories of the most frequently prescribed medications. Online
research articles, information booklets, and book reviews are also
MEDLINEplus: Mental Health and Behavior Topics These
mental health resources have been provided by the National Library
of Medicine specifically for consumers. They include ready-made
searches of the Medline database, as well as links to reports and
pamphlets which can be downloaded. Drawing on the resources of both
the National Library of Medicine, and the National Institutes of
Health, with additional material from other sources carefully
selected and evaluated, this site can be relied upon for high
quality, accurate, and authoritative health information.
Mental Health Care
Mental health information from the Institute of Psychiatry, King's College London, South London and Maudsley NHS Trust, and Rethink. This web site is aimed at anyone providing support to someone experiencing mental illness.
Mental Health First Aid for South Australians
By Karin Myhill and Margaret Tobin, developed in collaboration with
Social Justice and Country Division, Department of Human Services,
Mental Health Unit, 2001.
Mental Health Foundation Publications
A large collection of reports and information booklets for consumers and carers from the Mental Health Foundation in the U.K. Most can be downloaded free of charge.
Mental Health in Multicultural Australia - Translations
From the mental health in Multicultural Australia web site, consumer
information in a wide range of languages.
Mental Health Information for All
From the Royal College of Psychiatrists in the U.K. Readable and well-researched information for the public.
Mental Health Wiki
Mental Health Wiki is a guide to mental health problems. It aims to provide high quality and up-to-date information by allowing contributors to edit and improve each other’s material and incorporates material from professional journals, textbooks and websites run by government organisations. Mental Health Wiki is run by a team of researchers at the University of Melbourne in Australia. This team is headed by Professor Tony Jorm whose research focuses on public knowledge and beliefs about mental disorders.
A site, described as "the online resource for bipolar disorder schizophrenia and general mental health information", is owned by Janssen
Pharmaceutical Products. It is well designed and contains personal
stories, help leaflets, a small list of videos and books, and a
variety of links to information on mental health topics.
Mind > Information > Booklets by series > Understanding...
A series of online booklets on individual mental disorders, from Mind, the leading mental health charity in England and Wales.
Mind & Mood - Healthy Living - Health & Wellbeing
From ABC Health & Wellbeing, the Australian Broadcasting Corporation's online health gateway.
National Institute for Mental Health Publications
National Mental Health Information Center
This web site is a component of the SAMHSA Health Information Network in the United States.
NOAH (New York
Online Access to Health) - Mental Health
New York Online Access to Health (NOAH) is a joint project of four
New York partners who have worked together on a variety of projects
for 26 years: The City University of New York, The Metropolitan New
York Library Council, The New York Academy of Medicine and The New
York Public Library.
Consumer information on a wide range of topics from a team of mental health professionals, headed by Dr John Grohol.
- Table of Contents
This online book is written by Clayton E. Tucker-Ladd, a clinical
psychologist who lives and practices in Illinois. It can be
downloaded in its entirety, or chapter by chapter.
PMC is a free full-text archive of biomedical and life sciences journal literature at the U.S. National Institutes of Health's National Library of Medicine (NIH/NLM). You can search for free journal articles on any mental health topic. This resource is suited to more sophisticated enquiries rather than general information about a mental health problem.
SANE is a national charity devoted to helping people with a mental
illness. Their web site includes downloadable fact sheets on
a variety of disorders and their treatment.
I've included this site here rather than on my journals page, as
it's more interactive than a traditional journal. It hosts a large
number of discussion forums, and offers a free email