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Mental Health Consumers and Carers


Last update: 19 May 2009



LIST OF MENTAL HEALTH TOPICS

Aboriginal Mental Health

Administration and Policy in Mental Health

Anxiety Disorders, Obsessive-Compulsive Disorder, and Phobias

Art Collections and Art Therapy

Books By or About People with a Mental Illness

Child and Adolescent Mental Health

Consumers and Carers

Crisis Intervention and Emergency Services

Depression

Drug and Alcohol Abuse

Dual Diagnosis

Electroconvulsive Therapy (ECT)

Evidence-Based Mental Health

Forensic Psychiatry

Geriatrics and Geriatric Psychiatry

Guidelines
- to assist with clinical treatment issues

Health Promotion (Mental Health)

Housing for People with a Mental Illness
- includes problems of homelessness

Legislation

Mental Health (General mental health sites)

Personality Disorders

Post-Traumatic Stress Disorder

Primary Care - Mental Health

Psychiatric Drug Information

Psychiatric Nursing

PubMed (a free version of Medline) - and how to use it

Rating Scales

Rehabilitation and Recovery

Rural Mental Health

Schizophrenia and Other Psychotic Disorders

Statistics

Suicide and Self-Injurious Behaviour

Theorists and Theories

Violence, Aggression and Dangerous Behaviour

This page contains links to sites which contain information about consumers and their involvement with mental health services, and information for consumers on various mental disorders and their treatment.

Consumer sites related to specific disorders will be found in the appropriate sections listed in the left hand column.

You will find general health information for consumers on my public health page

Lists of books and journal articles relating to consumer and carer issues can be found on my bibliographies and reading lists page.


Consumer and Carer Involvement

Active Outreach: An independent service user evaluation of a model of assertive outreach practice
By R Graley-Wetherall, and S Morgan. Sainsbury Centre for Mental Health, August 2005. This report examines the role of an assertive outreach team in Norwich, from the perspective of its users.

Alfred Psychiatry Consumer Participation Program: Staff-Consumer Collaboration in Treatment: Final Report
Jon Kroschel, Alfred Psychiatry Consumer Participation Group, June 2001. The report documents the development of a 'staff-consumer collaboration in treatment' workbook which is designed for collaborative use by case-managers and consumers within individual treatment settings, and aims to assist consumers to participate more fully within their own treatments.

Assessing the Promise: An Evaluation of the Work of the Consumer and Consumer Supporter National Technical Assistance Centers
The Center for Mental Health Services (CMHS)in the United States funds 5 national consumer and consumer-supporter Technical Assistance Centers (TACs) to accomplish the goals of assisting consumers in becoming independent, navigating services, developing self-help skills, communicating and supporting one another, and learning about resources. This 2002 Report is an evaluation of the five (5) consumer and consumer-supporter National Technical Assistance Centers (TACs).

Carers of People with Mental Ilness Project. Final Report. .
Produced by the Mental Health Council of Australia in partnership with Carers Association of Australia, June 2000.

Caring Together: An Action Plan for Carer Involvement in Victorian Public Mental Health Services
Victoria, Department of Human Services, Mental Health Branch, July 2005.

Choice in Mental Health Care: Briefing Paper 31
Sainsbury Centre for Mental Health, July 2006. A literature review - Choice Literature Review: A Review of the Literature and Consultation on Choice and Decision-making for Users and Carers of Mental Health and Social Care Services is also available.

Consumer and Carer Participation Policy: A Framework for the Mental Health Sector
Developed by the National Consumer and Carer Forum of Australia, January 2005.

Consumer Self-Rated Outcome Measures in Mental Health
A Report to the Mental Health Branch, Department of Human Services (Victoria), by Siggins Miller Consultants, October 2003.

Consumer/Survivor-Operated Self-Help Programs: A Technical Report, National Mental Health Information Center
Consumer/Survivor-Operated Self-help Programs, A Retrospective Review of the Mental Health Consumer/Survivor Movement and 13 Federally Funded Consumer/Survivor-Operated Service Programs in the 1980s. U.S. Department of Health and Human Services, Substance Abuse and Mental Health Services Administration, Center for Mental Health Services. February 2001. This is the first comprehensive documentation of the experiences of consumers/survivors in designing and operating their own self-help programs.

Developing Services for Carers and Families of People with Mental Illness
Department of Health (U.K.) November 2002. The aim of this document is to help local mental health services develop support services for carers of people with mental health problems.

Employer Tool-Kit: Employing Peer Workers in Your Organisation
BCS Peer Support Project. Baptist Community Services (SA) Inc, June 2007.

Identifying the carer project: Final report and recommendations for the Commonwealth Department of Health and Ageing
The "Identifying the carer project" examined issues associated with identification of carers in the context of mental health service delivery. This included current practice, policy and legislation, and preferred processes. Project Manager Janne McMahon, Project Officer Judy Hardy, Project Assistant Ruth Carson. Private Mental Health Consumer Carer Network (Australia), 2007.

In Our Experience: User-Focused Monitoring of Mental Health Services
Sainsbury Centre for Mental Health, March 1998. Reviewing a groundbreaking partnership between Kensington & Chelsea and Westminster Health Authority (KCW) and The Sainsbury Centre for Mental Health, this pilot study demonstrated that people with severe and enduring mental illness can have a voice in decisions about the mental health services that they receive.

Mental Health of Carers
The report of a survey carried out by the Social Survey Division of the Office for National Statistics on behalf of the Department of Health, by Nicola Singleton and others. London, HMSO, 2002.

Mental Health Service User Movement in England
Sainsbury Centre for Mental Health Policy Paper 2, May 2003.

On Our Own Terms: Users and Survivors of Mental health Services Working Together for Support and Change
By Jan Wallcraft, Jim Read, and Angela Sweeney. Published on behalf of the User Survey Steering Group. London, Sainsbury Centre for Mental Health, 2003.

Our Voice in Our Future: Benefits
By Michael Turner. London, Shaping Our Lives/National Institute for Social Work, 2000. This booklet is part of the Our Voice In Our Future project which aims to give people who use services and receive benefits provided through the welfare state a say in their future.

Our Voice in Our Future: Mental Health Issues
By Peter Beresford. London, Shaping Our Lives/National Institute for Social Work, 2000.

Our Voice in Our Future: Services and Support
By Michael Turner. London, Shaping Our Lives/National Institute for Social Work, 2000.

Paving New Ground: Peers Working in In-Patient Settings
By Gayle Bluebird, National Consumer Survivor Consultant. National Technical Assistance Center, National Association of State Mental Health Program Directors, Alexandria, VA, 2008.

Promoting Consumer Participation in Mental Health Research: A National Workshop
Depressiona & Anxiety Consumer Research Unit, Centre for mental Health Research, Australian National University, September 2004.

The Reforms to Mental Health and Their Impact on the Empowerment of Consumers and Carers
University of Melbourne ePrints Repository - Phd thesis by Arthur J Lammers, School of Postgraduate Nursing, Faculty of Medicine, Dentistry and Health Sciences, University of Melbourne, 2002.

The wellbeing of Australians : carer health and wellbeing
The wellbeing of Australians : carer health and wellbeing. By Robert A. Cummins and others. Also Titled: Special report : the wellbeing of Australians - carer health and wellbeing. Geelong, Vic., Deakin University, 2007.
Australian Unity wellbeing index : survey 17.1.

Working Together With Families and Caregivers
Chief Psychiatrist's Guideline. Victoria, Department of Human Services, Mental Health Branch, April 2005.

Information For Consumers on Mental Disorders and Services

BBC - Health - Conditions - Mental health

CounsellingResource.com -- Counselling & Psychotherapy Resources
A well designed and informative site which will be of value to both clients and mental health practitioners. The site is the work of Greg Mulhauser who has a PhD in Philosophy of Mind.

Eating Disorder Referral and Information Center
The Eating Disorder Referral and Information Center is dedicated to the prevention and treatment of eating disorders. The site provides information about the treatment and prevention of eating disorders and aims to promote social attitudes that enhance a healthy body image and self-esteem.

Go Ask Alice!: Emotional Health
Go Ask Alice! is the health question and answer Internet site produced by Alice!, Columbia University's Health Education Program division of the Columbia University Health Service. "Alice" answers questions about relationships; sexuality; sexual health; emotional health; fitness; nutrition; alcohol, nicotine, and other drugs; and, general health. This link is to the section on emotional health.

HealthInsite: A-Z Health Topics
HealthInsite is an Australian Government initiative, funded by the Department of Health and Ageing. It aims to improve the health of Australians by providing easy access to quality information about human health.

Healthy minds. Healthy lives.
Public information from the American Psyhciatric Association.

Internet Mental Health
Mental health encyclopaedia for professionals, consumers. Includes extensive descriptions of the symptoms, diagnoses, and treatments of the most common mental health disorders, as well as detailed histories of the most frequently prescribed medications. Online research articles, information booklets, and book reviews are also available.

MEDLINEplus: Mental Health and Behavior Topics These mental health resources have been provided by the National Library of Medicine specifically for consumers. They include ready-made searches of the Medline database, as well as links to reports and pamphlets which can be downloaded. Drawing on the resources of both the National Library of Medicine, and the National Institutes of Health, with additional material from other sources carefully selected and evaluated, this site can be relied upon for high quality, accurate, and authoritative health information.

Mental Health Care
Mental health information from the Institute of Psychiatry, King's College London, South London and Maudsley NHS Trust, and Rethink. This web site is aimed at anyone providing support to someone experiencing mental illness.

Mental Health First Aid for South Australians
By Karin Myhill and Margaret Tobin, developed in collaboration with Social Justice and Country Division, Department of Human Services, Mental Health Unit, 2001.

Mental Health First Aid Manual
By Betty Kitchener and Anthony Jorm. Australian National University, Centre for Mental Health Research, 2002.

Mental Health Foundation Publications
A large collection of reports and information booklets for consumers and carers from the Mental Health Foundation in the U.K. Most can be downloaded free of charge.

Mental Health Information for All
From the Royal College of Psychiatrists in the U.K. Readable and well-researched information for the public.

Mentalwellness.com
A site, described as "the online resource for bipolar disorder schizophrenia and general mental health information", is owned by Janssen Pharmaceutical Products. It is well designed and contains personal stories, help leaflets, a small list of videos and books, and a variety of links to information on mental health topics.

Mind > Information > Booklets by series > Understanding...
A series of online booklets on individual mental disorders, from Mind, the leading mental health charity in England and Wales.

Mind & Mood - Healthy Living - Health & Wellbeing
From ABC Health & Wellbeing, the Australian Broadcasting Corporation's online health gateway.

Multicultural Mental Health Australia - Fact Sheets
From the Multicultural Mental Health Australia web site, consumer information in a wide range of languages.

National Institute for Mental Health Publications

National Mental Health Information Center
This web site is a component of the SAMHSA Health Information Network in the United States.

NHS Evidence - Mental Health
From the National Health Service in the U.K.

NOAH (New York Online Access to Health) - Mental Health
New York Online Access to Health (NOAH) is a joint project of four New York partners who have worked together on a variety of projects for 26 years: The City University of New York, The Metropolitan New York Library Council, The New York Academy of Medicine and The New York Public Library.

Norfolk Mental Health Care Pharmacy site
This site includes drugs listed by name, with direct links to specific information for users and carers, taken from the "Your Medicines - Any Questions?" book.

Psych Central
Consumer information on a wide range of topics from a team of mental health professionals, headed by Dr John Grohol.

Psychological Self-Help - Table of Contents
This online book is written by Clayton E. Tucker-Ladd, a clinical psychologist who lives and practices in Illinois. It can be downloaded in its entirety, or chapter by chapter.

SANE Australia
SANE is a national charity devoted to helping people with a mental illness. Their web site includes downloadable fact sheets on a variety of disorders and their treatment.

Self-help Magazine
I've included this site here rather than on my journals page, as it's more interactive than a traditional journal. It hosts a large number of discussion forums, and offers a free email newsletter.