Thank you for your interest in the mensHealth Register. By becoming a member you will be helping us to undertake research aimed at advancing the health and well-being of men in Australia.
What is the mensHealth Register?
The mensHealth Register is a pool of men ready to help us efficiently undertake research. By joining the Register you will be invited to participate in men’s health research, and research where it is important to have good representation by men. You will have the opportunity to have a say on a range of issues affecting men's health and join studies of new treatments and programs, and receive up to date men's health information.
What does registering involve?
To join, click on the REGISTER NOW button below and complete the on-line form that asks you for your name, email, phone number and postcode. After registering you will be directed to an optional health and lifestyle survey that will only take a few minutes to complete. This information will only be used to collectively profile men participating in the register. Your information is strictly confidential and will be collected through a secure on-line platform and stored on a local server.
Research Projects Currently Seeking Men
- The Australian Environmental Determinants of Islet Autoimmunity (ENDIA) Study
Type 1 diabetes is a lifelong condition resulting from an autoimmune response where the body attacks its own insulin producing cells. The incidence of type 1 diabetes is increasing. Approximately 4 children and 2 adults are diagnosed in Australia each and every day. The ENDIA Study believes the modern environment has a great deal to do with this. The Australian ENDIA Study is the first in the world to explore the causes of type 1 diabetes from the pregnancy. If you are an adult male with type 1 diabetes and your partner is pregnant, or you have just had a new baby under 6 months ago, consider joining the ENDIA Study. Women with type 1 diabetes who are welcoming a new baby to the family are also eligible. In brief, ENDIA involves regular follow-up by a nurse including completing questionnaires and collection of samples like saliva and skin swabs. Although mum or dad are asked to complete the questionnaires, the main participant is the baby. ENDIA aims to follow 1400 babies from early life into childhood to see how environmental and genetic interactions influence the development of, or protection from, type 1 diabetes. Please help us reach our target so that we can find an answer to what causes type 1 diabetes. If we know what causes type 1 diabetes, we can then find ways to prevent it from happening in the first place! For more information go to www.endia.org.au, www.facebook.com/endiastudy or email email@example.com. HREC approval number HREC/16/WCHN/66.
- Making things more relevant: Chat to us about prostate cancer and lifestyle change support
This study aims to seek input from men who have been diagnosed and treated for prostate cancer to help us design relevant online physical activity resources that may help other men to regain health and fitness after treatment. Are all men fundamentally the same? Or is every man different? Either way, we need to talk to men so that we can ensure we’ve actually had a conversation with the people we are designing services for. This is to ensure that our programs hit the mark and are taking the context of men’s lives into account. Your help will save time and money, and hopefully help us to design something that appeals to men and is actually useful. To be eligible for involvement in this project you must be over 18 years old, be able to speak English fluently, have been diagnosed with prostate cancer and have completed active treatment for prostate cancer (e.g. surgery or radiotherapy) and currently be in remission. Participation involves a phone interview. If you are interested in this study please contact PhD student Amy Finlay via phone on 61 8 8313 0532 or email at firstname.lastname@example.org. Click here for more information. HREC number H-2017-101.
- Parental Cancer
This project aims to explore how people experience their parent’s cancer. Specifically, it will look at how positive emotion (such as joy, amusement, or hope) interacts with resilience (the ability to bounce back after a negative event) and post traumatic growth (positive change that occurs following a traumatic event). Participants must be over 18 years old, have/had a parent with cancer in the last 10 years, and have been aged 10 – 24 years at the time of their parent’s cancer. If you are interested in participating in this study please visit http://www.surveygizmo.com/s3/3184224/parentalcancersurvey. HREC number: RA/4/1/8660.
- Active surveillance, exercise and prostate cancer - Study closed - thank you for your help!
This study aims to evaluate the experiences of men on active surveillance programs for low risk, localised prostate cancer. Active surveillance involves the close monitoring of the disease (e.g., through PSA tests) for signs of disease progression. We are investigating men’s needs, preferences and attitudes towards support and exercise. Participation involves a telephone interview. You must be over 18 and living in Australia, have been diagnosed with non-metastatic prostate cancer, and have been on active surveillance for at least 3 months. Partners of men meeting these criteria are also invited to participate. Click here for more information, or contact Dr. Camille Short at email@example.com or phone on 08 8313 0532. University of Adelaide Human Research Ethics sub-committee, HREC approval number: 17/57.
mensHealth Register Frequently Asked Questions
- Why do we need a register?
Through research, we strive to enhance the health and well-being of men and improve health services to better cater for the needs and preferences of men.To help us to this end, we need men of all ages and from all walks of life involved in research to ensure that men are adequately represented.
- How do researchers contact you?
Using your preferred method of contact, the Register will send out notifications of new studies seeking participants. For most
projects, you will be provided with a direct link to the study information. For
some projects, researchers may choose to contact you directly using the details you have provided after you have expressed interest in a particular project and have given consent for them to do so.
- How is your personal information protected?
- What type of research can I get involved with?
Research can include a variety of activities; these range from simple surveys, to trialling new devices and lifestyle programs and new treatments for particular health conditions. Research may include studies related to fitness and nutrition, weight management, testosterone, mental health, diabetes, cancer, urinary health, health services, preventative health, reproductive and sexual health, sleep health, workplace health, heart disease, prostate health, healthy ageing and fatherhood among others.
- How much time is involved?
The time involved in being a member of the Register is as much as it takes to read emails that we send through to you on upcoming research that you may be interested in. Each research study differs in time commitments and is therefore dependent on your availability at your choosing.
- What occurs in a research study the Register may advertise?
As each research study is different, the range of activities vary. This information will be made available through the notifications you receive before you choose to participate so you can make an informed decision to be involved.
- What are the potential risks and benefits of being a mensHealth Register member?
By joining the Register, you can keep up to date on new research studies, be involved, and have a say across a range of men's health related matters. There is a minimum risk on breach of confidentiality of your personal information, however this is mitigated through restricted access with the use of a local secure university server.
- Who manages the mensHealth Register?
The mensHealth Register is managed byThe Freemasons Foundation Centre for Men’s Health at the University of Adelaide.
- Will it cost me anything to be a mensHealth Register member?
- Who should I contact if I have any questions?
You can contact us on 08 8313 0514, or emailing us at firstname.lastname@example.org. Alternatively if you have any queries on specific research studies, you should directly contact the researcher in charge, whose contact details will be made available when email notifications are sent out.
- Can I sign up if I am under the age of 18?
No. Only men aged 18 years and over can sign up.
- Do I get paid?
No. Joining the Register is voluntary. Some research projects, advertised through the Registry may reimburse you for your participation.
- Can I change or withdraw my details?
You can change or withdraw your details at any time by contacting us on 08 8313 0514, or emailing us at email@example.com. Please note, when you withdraw your participation, your details may be removed from the Register but will be stored securely for a minimum of 5 years as per university policy. You may, however, explicitly request to have your data destroyed immediately.
- I live outside Australia, can I still sign up to the mensHealth Register?
No. You must be currently residing in Australia.
- Can I register if I am female?
No. Research studies recruiting both men and women will however be listed here for your information.
- Who has reviewed the mensHealth Register project?
Research in Australia are reviewed and approved by an independent Human Research Ethics Committee (HREC). The Register has been approved by the University of Adelaide's HREC. The approval number for this Register is H-2017-047. The Register complies with the National Statement on Ethical Conduct in Human Research (2007) including all updates, produced by the National Health and Medical Research Council of Australia.
- Who can I contact about the Register independent of the Register?
If you have any queries or complaints regarding the Register, or regarding your rights as a research participant, you may contact the University of Adelaide Human Research Ethics Committee on 08 83313 4725, or emailing firstname.lastname@example.org.
- How long will the Register and my information be maintained?
The Register is an ongoing initiative, but at any time it is closed, you request to be withdrawn, or from the date you become non-contactable, your data will be stored securely for a minimum of 5 years as per university policy.