Frequently Asked Questions
What is Cerebral Palsy?
Cerebral Palsy is a group of disorders affecting movement and posture. The severity of symptoms ranges from mild problems with muscle coordination to severe spasticity of all four limbs. Cerebral palsy is non-progressive, meaning injury to the brain does not get worse over time and it is diagnosed in about 1 in 500 babies born in Australia.
How will this study benefit those with Cerebral Palsy?
The Biobank and related studies are unlikely to benefit those who currently have Cerebral Palsy. However, the results of these studies will help to understand its causes. This information could help to design Cerebral Palsy prevention strategies and possibly reduce its incidence in future generations.
Is there any financial incentive for enrolling in this research?
No. The Biobank is open to consenting volunteers and there are no financial incentives. You would only be required to donate blood and fill out a questionnaire. The time required is minimal but your contribution to our knowledge of Cerebral Palsy is potentially great.
What if I want to withdraw from the Biobank?
Withdrawal will not compromise the care of you or your child in any way. You can withdraw from the Biobank at any time via one of the following methods:
- Phone (08) 8313 1404
- Email firstname.lastname@example.org
- Complete the withdrawal form for Women's and Children's Hospital, The Children's Hospital at Westmead, Lady Cilento Children's Hospital or Sydney Children's Hospital and post it to the Reply Paid address below:
The Australian Cerebral Palsy Research Study (77)
Discipline of Obstetrics and Gynaecology
University of Adelaide - Women's and Children's Hospital
Reply Paid 60836
North Adelaide SA 5006
Can I be identified?
No. Participants cannot be identified or disclosed in publications or to a third party.
Does this research have ethical approval?
Yes. Our research has independent ethical approval. For ethical concerns please contact the ethics committee in your state below.
- SA: Children's, Youth and Women's Health Service Human Research Ethics Committee , Ph: (08) 8161 6521
- NSW: Sydney Children's Hospitals Network Human Research Ethics Committee, Ph: (02) 9845 1253
- QLD: The Queensland Children's Health Services (RCH) Human Research Ethics Committee (HREC), Ph: (07) 3636 9167
Who is sponsoring this study?
This study is not sponsored by any commercial company but is conducted with funding from the National Health and Medical Research Council and the Cerebral Palsy Foundation. The South Australian Cerebral Palsy Research Group is supported by:
- The University of Adelaide, Robinson Institute, Discipline of Obstetric and Gynaecology;
- The Women's and Children's Hospital, Adelaide;
Is there a cure for Cerebral Palsy?
There is no known cure for Cerebral Palsy. People with Cerebral Palsy receive a range of treatments to minimise their impairments but there is currently no cure. Studies like this are particularly important as they may result in prevention and/or treatment strategies to reduce the incidence of cerebral palsy in future generations.
Return to the Australian Collaborative Cerebral Palsy Research Group home page